PULMONĀLĀS HIPERTENSIJAS BIEDRĪBA

World Pulmonary Hypertension day on 5th May turned out to be a beautiful and active holiday for us among friends and families.

The Charity Sports Games "GET BREATHLESS for PH" in Salaspils attracted great interest and there were 224 participants ready to "get breathless for PH" on the sunny spring day - 150 children and 74 adults. Among them there were teams of two other patient organizations and our supporters Salaspils District Council.

Gold medalist of 7th World Choir Games in Cincinnati (USA) last year, Mixed choir of the Latvian Academy of Culture “Sōla” visited us and gave a musical performance. We could also enjoy aerobics, children's karate, gymnastics and break-dancing demonstrations. The event was hosted by popular actors Agnese Zeltina and Viezturs Vizulis and World ashihara-karate champion Vitaly Bereznev opened the sports games. Participants also answered questions about heart and lung health and pulmonary hypertension before every relay race. Meanwhile the ones who did not participate in the competitions could do 6 minute walking test with PH doctors Ainars Rudzitis and Andris Skride. There where many people who took this chance to check their health - doctors worked for three hours to examine everyone and people waited in lines all the time.

Participants of the sports games got the "GET BREATHLESS for PH" T-shirts, lollipops, free water and juices from SIA "Frutus Food". The winners received gift certificates from Adventure Park "Mezakakis",  online store"Toys.lv", other valuable prizes and cups. The ones who showed the best results in individual competitions - Marcis from Gulbene and Darja from Salaspils won new bikes from online store "VeloAtlaides.lv".

And here you can see a video of aerobics demonstration:

On 5th May, World Pulmonary Hypertention day in Salaspils

Welcome to join charity sports games

GET BRETAHLESS for PH!

Participate together with your family, team or individually

and win a new bike or other valuable prizes!

Read regulations of the games here (in latvian)

Fill application for family or team (in latvian)

Fill individual application (in latvian)

Send your application to: This email address is being protected from spambots. You need JavaScript enabled to view it.

until May 3.

During the event we will start to collect donations for three patients to get necessary operations.

Start of the games will be given by the world record-holder, Olympic vice-champion AIGARS FADEJEVS.

There will also be a chance to check your health in 6 minute walking test and get to know more about pulmonary hypertension.

We spent the Rare disease day 2013 event "Rare and friendly" on 27th february in warm and cheerful atmosphere. To support rare disease patients, especially kids, popular personalities of Latvia - signers Intars Busulis, Jenny May and hockey club "DINAMO RĪGA" player Arvids Rekis joined a photo session with us and our friends from other rare disease patient organizations of Latvia.

Here you can see how we did in photo session "We meet friends" and press conference "We talk". The event caught also some media attention - TV3 news, daly newspapers „Diena” and "Neatkarīgā Rīta Avīze", radio SWHPlus, and specialized internet portals and others - talked about us.

Opening the event, World ashihara-karate champion Vitaly Bereznev told that he had to win great combat in the World championship to lift the champion title, but for patients of rare diseases every day is like such struggle, because it is a struggle for life.

Musician Intars Busulis acknowledged that it is a great pleasure to be able to draw public attention to rare diseases by presence at such event.

"I have children myself and I evaluate everything you have done for the sake of your kids without loosing optimism," the musician said to parents of children with rare diseases.

Singer Jenny May in her turn emphasized that only when you have got to know the pain of loss yourself, you can realize how precious is every human being.